Good night, my love

I’m blessed to have a love of my life to share those words with. We have experienced almost 34 years of marriage, and 14 years of ALS. We are together until death do we part. And, if I am telling the story, I joke about her dying first. No time soon, of course. We’ve got a lot of living and loving to go.

I was also blessed today with making a new friend. It was my first time meeting her as my registry nurse. I’m drawn to people who know and do their job well with mindful, thoughtful, and caring service. Anyway, she spotted my books on display in my room on the bulletin board and purchased one. Later, she bought two more books. I asked that she be blessed by the thoughts.

I’m here in my command post, with no ability to talk unassisted, and yet I am reaching out and communicating with far-reaching contacts around the world. Who would have ever thunk’ it? ALS – Always Living Successfully. Not so much by income, but by my outgoing love, concern, and prayers. Sometimes, I even have the pleasure of contributing to the lives of others monetarily. Woo-hoo.

Yeah, being disabled is sometimes difficult. Nope, we didn’t sign up for this, but it is what it is. We’re going to rock even with our condition. What would life be if we had no courage to attempt anything? Vincent Van Gogh. Simplysaidbysimon, let’s fly with ALS – Aviation Limitless Soaring.

Published by simplysaidbysimon

My name is Chris Simon. I was diagnosed with ALS 14 years ago. I have lived in a sub-acute facility for a little over 6 years. God has blessed me to have a good perspective and a loving wife and daughter. I'm definitely utilizing my downtime with several activities. Part of one year, I was a Crisis Text Line Counselor for suicide prevention. Other times, I put together 4 daily devotional books. Currently, I am reading and listening to music mostly, while writing two additional books.

Leave a comment